Miss Madison: Valentine Pictures

Thursday, February 18, 2010

Valentine Pictures

This is Mark, Madison's dad. Michelle wanted me to post her valentine card. We were originally going to have family pictures taken the first week in December for our Christmas cards, but that didn't work out as planned. So, here is the Valentine card as well as a few other pictures.

5 comments:

Amy said...: How adorable! Michelle, you look gorgeous!! Love the photos!; February 18, 2010 at 12:31 PM
The Simmons Family said...: Super cute pictures!!! Valentines means a little more these days doesn't it! :) Hope you had a perfect day.; February 18, 2010 at 12:50 PM
Becca said...: Too cute!!! I can't believe how good she looks!! Love all the pics!; February 18, 2010 at 9:15 PM
Ryan and Susie said...: What an adorable family! I love the backdrop too and those hanging heart ornaments are really cute. Love the hearts!!; February 19, 2010 at 11:12 AM
Nicole said...: You guys are a beautiful family, inside & out! I LOVE all the pictures. I am so glad that things are going so good for you guys, so glad!; February 19, 2010 at 2:55 PM

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Miss Madison and her twin brother, Cooper were born June 10, 2008 at the University of Utah Hospital.
Madison is diagnosed with Wolfe-Parkinson White Syndrome (abnormal heart arrhythmias) and Hypertrophic Cardiomypathy (heart muscle is too thick). Due to the Hypertophic Cardiomypathy, Madison's heart is unable to function properly. Currently, her little heart is working too hard resulting in the valves leaking and a few other symptoms.
On October 15, 2009 Madison was listed for a Heart Transplant. She is listed as a 1B status.

UPDATE: On November 30, 2009, Madison was admitted to the ICU at Primary Children's Hospital for severe heart failure. We had hit our brick wall that Dr. Everitt explained might happen. Madison was pale, lethargic, and throwing up. Her liver was enlarged. It was obvious that we were heading in the wrong direction.
Immediately upon being admitted, Milrinone (heart medication administered only through IV) was started. Madison also had to have a J-Tube placed (kind of like a G-Tube, but goes to the intestines rather than her stomach).
At this time, Madison's status was changed to a 1A on the Heart Transplant List.
On day 4 of being in the ICU, Mark and I were notified that a heart had become available for Madison. Our medical team believed this would be the perfect heart for our little girl.
On December 4, 2009, Madison received the most sacred gift; she received her new heart. Thank you to our donor family. We love you.

The Day I Became a Heart Mom

One day my world came crashing down, I'll never be the same. They told me that my child was sick. I thought, "am I to blame"? I don't think I can handle this. I am really not that strong. It seemed my heart was breaking. I have loved her for so long. I will not give up on this child. I will listen to your advice. I will give my child any chance. No matter what the price. I will learn all that I need to help my child thrive. I'll even use that feeding tube. My child must survive!

Will she need a lot of therapy? Will she gain the needed weight? Please God, help me do this. I will accept our fate.

When the monitors beep at night, it serves as my reminder. How many parents would love that sound. Tomorrow I will be kinder. As another Angel earns his wings, I run to my child's bed. I watch her sleep for quite a while. I bend down and kiss her head. I cry for the parents whose hearts have been broken. I look to You wondering why? Oh Lord, I just can't know your ways....no matter how I try.

And yet, I trust you hold her life, and guide us through each day. My mind says savor each moment she's here, but my heart begs, "PLEASE let her stay"!

From pacing the surgical waiting room, to sitting by her bed. From wishing for a good nights sleep, to learning every med. From wondering, "will she be alright?", to watching her reach out her hands. With every smile my heart just melts, despite life's harsh demands.

For all who see that faded line. I look to them and smile. You see MY child is loved so much. I would face ANY trial. That scar I trace with my finger (It's the door to her beautiful NEW heart). God must have known how much I'd love her (Just as He loved her from the start).

A heart mom is always a heart mom. Now wise beyond her years. For those who have angels in heaven, our hearts share in all of your tears.

Every day I will try and remember, I was chosen for her (and no other). I will always embrace that beautiful day.......When I became a "Heart Mom".

- Stephanie Husted

Miss Madison

Thursday, February 18, 2010

Valentine Pictures

5 comments:

Dates to Remember:

Madison

Twin Brother Cooper

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Sweet Ellie

How to Become an Organ Donor...

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The Day I Became a Heart Mom

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