Just wanted to give a quick little update. Madison continues to do absolutely fabulous! (I keep my fingers and toes crossed at all times..) My heart is definitely full with gratitude. As of appointment #9, we have graduated to once a week appointments. Madison's medications are still the same, little fluctuations have occurred, but still 13 meds a day.
Appointment #9 was a lot of fun! Hillary, it was so nice to bump into you. I'm so glad that Daxton and Madison shared their appointment. It was funny to hear the reaction from the techs and Dr. Everitt when they heard we were sitting in the same exam room. We should plan more "play dates" like that one. Anyone else want to join?
I was wondering if any of the heart moms would like to meet for lunch? I love the support that we provide for each other and it would be nice to relax and chat. Because our kiddos are sensitive to germs and such, maybe we could meet on a Saturday when the dads might be available to babysit for a little bit. Let me know.
On a more serious note.. through blogging, we have had the opportunity to meet some amazing, strong families. There is one particular family that could use your help. Would each of you please keep Mason and his family in your thoughts and prayers? He is only a couple months older than Madison. He is a heart kiddo who has become my Heart Hero. He is such a tough little guy. His family is in the midst of having to make some tough decisions and could use some "behind the scenes" help. You are welcome to click on his name (Miracle Mason) and read more about this cute little boy. We love you Mason and your mamma is amazing!
7 months ago
9 comments:
Madison, you are a miracle pure and simple. I'm sorry I haven't responded sooner, I will be in Denver over that weekend. But we will have to get together when I come back from my big trip, we have much to catch up on!
Great news! Glad she is doing so well!!
Heck Ya! We would love to get together for lunch or even have a playdate in cardiology!!!! We will be there next monday all day and night for K's heart cath. Let me know if you are around then to say HI!!!
I'm so glad to hear that Madison is doing well and continuing to thrive. Very good news.
Hey! Glad to hear that Madison is doing so well! It was good to 'see' you at cardiology a few weeks ago. I wish we'd have been to chat. But Maddox being sick, and all those Docs and Nurses needing our attention....
Yeah for the update!!! It sounds like she is doing so well. I am so in on the lunch. I need it sooner than later. Things have been a little hecktic around here. I saw Hillary the other day and she wanted to do it too.
So happy Madison continues to do so well! We continue to pray for success with her new heart!
Thank you so much for the sweet comments you wrote about Mason on your post! It made me cry! The power of prayer is amazing isn't it?
Loves from Miracle Mason and Mommy
I'm so happy she is doing good! I would love to do lunch, let me know. I am pretty easy, Libbi is pretty low key as far as appts and such, i actually had to think for a bit if i would be considered a
'heart mom'
That little girl definately has me fooled :)
Yay for Maddie, and hugs to Mason and Ellie and all those others who are having a rough patch :( It breaks my heart.
Totally wanting to hear an update ;) I check in every so often to see how Maddie is doing. Hope all is well!
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