Thursday, March 11, 2010

Brand Name... All the Way!

Some girls simply prefer...

Baby GAP
Calvin Klein
J. Crew
Banana Republic
Ralph Lauren

... PROGRAF ! (the real stuff..)

Dear Insurance Company,
I know Prograf is expensive, BUT please continue to cover it.  
I'll send cookies. 
Sincerely, a desperate Heart Mom.

I wanted to wait and have Madison's Prograf levels checked a couple times before updating her blog.  With that in mind... her levels look good so far.  We are all relieved.  We have sent letters to our insurance company, updated the pharmacy, and officially changed to Prograf.  After all of this effort and the price of Prograf, one would think the bottle would be gold, OR at least have a big, gold bow on top.  But it doesn't. 

Good news:  (so much good news...)
1. Because Madison's Prograf level is stable, we are now at once a week appointments. 
2. Last week was the first week, since November 30 that Madison only had one blood draw.  My poor little girl has been poked at least twice a week since November 30.  AND she still never cries during a poke!  She watches intently and just as she's about to get poked, we simply say, "owie" together and then she is fine. 
3. Madison's medications are slowly decreasing (this is so exciting to watch..)  She now takes only 10 medications throughout the day. 

We are so proud of our little girl.  I can't believe what she's been through and she's just fine.  It's a miracle and gives me goose bumps every time I look at her.  She is doing so well.  She's beautiful and absolutely perfect with an absolutely perfect heart. 


Anonymous said...

Once a week clinic - how exciting! Glad to hear her levels are stable. What a brave little girl you have!

Amy and Cody said...

WOW, that is such, SUCH, great news! And I am completely impressed with her that she doesn't cry when they draw her blood. So glad to keep hearing good news from you!!

Mindi D said...

I'm so happy for you! She is doing so well. Good girl Madison!

Joe and Elisa said...

That is why we always called her MISS Madison. The little Diva she is :)

Kimmie said...

love the brand name thing...too funny!

and....i saw your hubby pushing the twins through the cabellas fish tunnel today...i recognized miss madison right away...i have never met any of you, but instantly knew she was the little girl who's had me smitten since november! i wanted to approach SO badly, but considering i had all 5 kids in tow, thought i'd better not. it was just heart warming to see her "getting out"!

so happy things are going well for your darling little family!

(hugs and warm wishes from a complete stranger)

Laurie said...


It was so awesome to see you at the mall today, shopping like any normal family with your two beautiful babies. No one who didn't know you would ever guess what you've been through. Cooper and Madison are beautiful. it's the first time I've seen them in person. You and Mark look great. I am so grateful for the blessings of modern medicine and all of the other blessings your family has received. Thanks for taking time to update us today. What a miracle!