Wednesday, April 14, 2010

Heart Biopsy Results: Perfect

I'm pleased to announce that Madison's Biopsy went well. She continues to amaze me everyday! I have a permanent smile on my face and quite often... tears of happiness. It's been quite an emotional day as I've thought about her perfect, perfect journey...


We had the opportunity to visit with Dr. Gray as the anesthesiologist was preparing the Cath Lab for Madison. Dr. Gray was thorough as he went over exactly what the Biopsy would entail and other things he would be looking for. One thing that is looked at are the pressures in her heart. This can (sort of) be compared to an exact, pin-pointed blood pressure. Knowing the pressures within her heart can also determine whether or not rejection is taking place. Just like a typical blood pressure, one wouldn't want the pressures to be too high, or too low.

Once the Cath Lab was ready, I had the opportunity to carry Madison in and be with her until she fell asleep. Thank you to our anesthesiologist for allowing me to do this.

Following her procedure, Dr. Gray was again thorough in explaining the results. Madison's pressures within her heart were high. This could mean that rejection is beginning to take place, OR it's a new heart in a new environment and simply needs more time to relax and settle. So... only knowing this much information, Mark and I continued on with the day. Dr. Gray wouldn't know anymore information until the Biopsy results came back.

As soon as Maddie could drink and felt well enough, we headed to the Cardiology Department for an echo and then to X-Ray for a chest x-ray. This was all routine and part of having a Biopsy or Cath Lab visit. It was a very long day and I was exhausted when we got home.


Last night, we received a phone call from Emily, our transplant coordinator informing us that Madison's Biopsy came back without any rejection! Mark and I were thrilled. Her little heart just needs more time to relax and settle in. So... it's ok that her pressures were high (this time).

This afternoon, I received another phone call from Emily informing us that Madison's labs came back absolutely perfect. Emily then discontinued 3 medications! Madison came home from transplant on 13 medications and now only takes 7. We are very happy and pleased with all results. One of the medications that was discontinued was her steriods. This means that we were given the green light to participate in life again. Yeah! No more lock down! WE ARE FREE!

For those who don't know, Madison does continue to take immunosuppressant medications. Prograf is one of them. She will take these medications for life. She will always be more susceptible to getting sick compared to a typical child. I will always be the paranoid mom who carries sanitizer everywhere I go. However, with this in mind... life goes on and we just be extra careful. And I'm grateful for this.

With all of this good news, Mark and I had to celebrate! We gathered our small family.. this time, Madison included and went to Red Robin for milk shakes. And I proudly walked into the restaurant with my Clorox Wipes, hand sanitizer, and high chair cover in hand.


From here, Madison continues with routine Cardiology appointments every two weeks and labs every week. Her next Biopsy will be in 6 months. After that, she will have a Biopsy every year for life.

Thank you to our friends and family for your prayers and support. Thank you to our donor family. We love you.

11 comments:

Amy said...

YAY! I am SO happy for you guys that biopsy is great!

Amy said...

YEAY!!!! That is so awesome!!!

Al, Jenny, Avery and James said...

YEAH!!!! This was such a great post to read!! Michelle I could not be happier for you and your family! I love that you celebrated out at a restaurant all together!! So fun. I can't wait to see Maddie.

And I completely understand the clorox wipes and sanitizer and I don't even have a child that had a transplant! I am always with my sanitizer. I think it helps, I really do!

Summer said...

CONGRATULATIONS!!!!
HUGS TO MADISON FROM MASON :-)

Shelene said...

SOOOOO glad it went ell. Congratulations sweet Madison. We missed you on Tuesday, but we knew you were where you needed to be. (Jill was asking about you). Hopefully we will see you at the music class this week! Love you guys!!!!!

Kimmie said...

such great news...i am still in complete awe of how absolutely perfect her heart journey has been! how humbling, wonderful, and exciting!

Ryan and Hilary said...

Hallelujah!!! I have been out of the blogging world so I was just catching up. I am so happy that there is no rejection!!! I am so happy you can join the land of the living. It is so nice to finally feel free. We should have a play date at a park, the kids would love it. Yeh for Madison!!

Becca said...

So glad all is going so well with Madison! We had Dr. Gray do Ellie's stint and I agree, he is amazing at what he does. Good luck with everything.

Becca-Ellie's mom

Sherri said...

Hurrah!!! We have been watching what has been going on, and love the posts! Keep up the spirits. The good will come to those who prepare. We love you all! Give hugs to the twins for us.

Michelle said...

So happy for you! I love reading good and great news about our heart kids! Alexa is also starting to go out for the first time without so much restriction! A whole new world for them! Hope you continue to get great news and enjoy this time!

Michelle
www.withallmyhearts.blogspot.com

Traci Bulkley said...

Yeah! Such good news! And good timing for getting out and about, we might have warm weather after all.