I meant to post this sooner..
Contrary from the moaning, whimpering, and being uncomfortable of yesterday, Madison has been sleeping peacefully all day. She continues to be performing quite the speedy recovery. She has surprised almost every doctor and nurse around. In fact, Maddie decided to sleep on her stomach last night. That's right. She rolled over, tucked her legs under, bum in the air and slept most of the night just like that. Yes, she still has chest tubes in and multiple IV lines. She didn't pull anything out (thank goodness). Her nurse felt that if she was comfortable and nothing was kinked.. then it was ok.
Maddie is eating real food by mouth. She has had yogart, eggs, potatoes, popsicle, juice, and formula. She is eating so good. We are so happy.
Madison's IV medications continue to disappear as she is beginning to take them orally.
Maddie does make it known to everyone that she doesn't like her diaper changed. I think it hurts her poor little chest when you lift her legs up. She cries and soon we are crying together as I change her little bum. I haven't made it through one diaper change without crying. I've just been informed that Madison will also need another Picc Line. Are they for real? I am so sad.. can I hold her through another one? That will happen tomorow.
So.. tomorrow's agenda includes:
1. Picc Line.
3. Taking out the Right Atrial Line. (that is kind of like an IV that is directly in her heart. It allows her medication to go directly in her heart and it measures the pressures on the right side of heart.)
4. Daily blood work.
5. Daily chest x-ray.
Her chest tubes still need to stay in as they are still draining quite a bit of fluid. This is ok that they are draining so much fluid.. she has a lot of extra space around her new heart (because her old heart was so big). That extra space can collect fluid easily, until her organs and lungs fill in that space.
Thanks again for your concern and continued support. Please continue to pray for Maddie as tomorrow will be a busy day for her. Take Care.
4 weeks ago