Just wanted to send a quick update. Madison continues to be doing really well. This afternoon, she was moved to the floor (just 6 days after surgery..). The floor has been a little adjustment for both her and I. I miss our 1:1 nurse and knowing that was 100% ok, if I left. Today I was gone for about 20-30 minutes; when I came back, she was crying in her crib and nobody was around. I felt terrible. But as the night has continued, things are slowly getting better.
Madison is taking all of her meds by mouth. (Holy Cow... LOTS OF MEDS..) She now takes 15 medications. Last night and tonight, she threw up after her last one. I plan on talking to the pharmacist tomorrow in regards to the side affects (I just want another print out. I know there are 100's of side affects..) and any suggestions. Meds just might be our biggest challenge when we get home.
I'm exhausted. Maddie and I are off to bed. Good night.
4 weeks ago