I can't help but hold my little girl and whisper to her... you did it! As our time here at Primary Children's is winding down, floods of emotion are upon me. It's definitely a Bitter-Sweet feeling. I can't seem to look at or talk to anyone without crying. Although I'm a mess, I don't think I need therapy (ha ha) .. I'm simply so thankful and humbled by this experience we've had. I can not believe what all we've accomplished this last 2.5 weeks - and none of it was planned. I have witnessed so many miracles and I'm so thankful for each one of them. I truely Stand All Amazed.
While there is much I want to write about ... I'm exhausted and will save them for another entry. :)
Madison has continued to do remarkably well through everything. Her last chest tube should be coming out tomorrow morning. Her medical team would like to observe her for at least 24 hours and then we will be going home. Wow... yes, another miracle will happen tomorrow.
Here is our busy schedule for tomorrow: (just incase anyone is curious what we do all day :) )
7:00am: Order breakfast
8:00am... Meds begin (Madison takes 10 medications at this time. It will take us 2 hours to eat breakfast and take meds .. and not throw up. While we have had many close calls, Maddie hasn't thrown up her meds in 3 days!!)
8:30am: Doctor's rounds.
10:00am: More Meds arrive (Madison has 3 more medications to take..)
10:00 am: Echo
** Sometime in the morning... chest tube comes out.
12:00pm: More meds arrive
Nap tme? (at least for me.. please?)
Time for bed..
**Seriously, if anyone has any suggestions for taking / giving meds - I'll take them. Maddie is doing really well... right now. But, I'm not sure how long it will last.
Thank you and goodnight.
(Shauntelle... I need to call you. I keep forgetting and now we are going home. I would really like to get together. I will call you tomorrow. Will you please call me, if I forget? (801) 649-9551. Thank you.)
4 weeks ago