Miss Madison: Update #1

Friday, December 4, 2009

Update #1

Just wanted to let everyone know that Maddie just went into surgery. It will be a couple hours before her heart is here. In the meantime, they are simply getting her ready.

I'll keep everyone posted. Thank you for your prayers and for the love you've shown our family. We feel so blessed to have such great support.

6 comments:

The Simmons Family said...: Praying for you all!!!; December 4, 2009 at 4:55 PM
Jennifer Clement said...: We're praying for you!; December 4, 2009 at 6:28 PM
Kaidence's Mommy said...: I hope that all is going well. It was great talking with you. Call me anytime and let me know if you need a place to stay, no matter what time it is.; December 4, 2009 at 6:39 PM
Kathy said...: Michelle thanks for taking the time to do the updates. Lots and lots of prayers are being said for Madison and you and Mark.
love,
Kathy; December 4, 2009 at 7:09 PM
Three Plus Me said...: Thinking of and praying for you all (and the doctors) constantly. We love you guys.; December 4, 2009 at 7:40 PM
Anonymous said...: I hope things go well...thinking good thoughts for your kiddo...; December 4, 2009 at 8:42 PM

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Miss Madison and her twin brother, Cooper were born June 10, 2008 at the University of Utah Hospital.
Madison is diagnosed with Wolfe-Parkinson White Syndrome (abnormal heart arrhythmias) and Hypertrophic Cardiomypathy (heart muscle is too thick). Due to the Hypertophic Cardiomypathy, Madison's heart is unable to function properly. Currently, her little heart is working too hard resulting in the valves leaking and a few other symptoms.
On October 15, 2009 Madison was listed for a Heart Transplant. She is listed as a 1B status.

UPDATE: On November 30, 2009, Madison was admitted to the ICU at Primary Children's Hospital for severe heart failure. We had hit our brick wall that Dr. Everitt explained might happen. Madison was pale, lethargic, and throwing up. Her liver was enlarged. It was obvious that we were heading in the wrong direction.
Immediately upon being admitted, Milrinone (heart medication administered only through IV) was started. Madison also had to have a J-Tube placed (kind of like a G-Tube, but goes to the intestines rather than her stomach).
At this time, Madison's status was changed to a 1A on the Heart Transplant List.
On day 4 of being in the ICU, Mark and I were notified that a heart had become available for Madison. Our medical team believed this would be the perfect heart for our little girl.
On December 4, 2009, Madison received the most sacred gift; she received her new heart. Thank you to our donor family. We love you.

The Day I Became a Heart Mom

One day my world came crashing down, I'll never be the same. They told me that my child was sick. I thought, "am I to blame"? I don't think I can handle this. I am really not that strong. It seemed my heart was breaking. I have loved her for so long. I will not give up on this child. I will listen to your advice. I will give my child any chance. No matter what the price. I will learn all that I need to help my child thrive. I'll even use that feeding tube. My child must survive!

Will she need a lot of therapy? Will she gain the needed weight? Please God, help me do this. I will accept our fate.

When the monitors beep at night, it serves as my reminder. How many parents would love that sound. Tomorrow I will be kinder. As another Angel earns his wings, I run to my child's bed. I watch her sleep for quite a while. I bend down and kiss her head. I cry for the parents whose hearts have been broken. I look to You wondering why? Oh Lord, I just can't know your ways....no matter how I try.

And yet, I trust you hold her life, and guide us through each day. My mind says savor each moment she's here, but my heart begs, "PLEASE let her stay"!

From pacing the surgical waiting room, to sitting by her bed. From wishing for a good nights sleep, to learning every med. From wondering, "will she be alright?", to watching her reach out her hands. With every smile my heart just melts, despite life's harsh demands.

For all who see that faded line. I look to them and smile. You see MY child is loved so much. I would face ANY trial. That scar I trace with my finger (It's the door to her beautiful NEW heart). God must have known how much I'd love her (Just as He loved her from the start).

A heart mom is always a heart mom. Now wise beyond her years. For those who have angels in heaven, our hearts share in all of your tears.

Every day I will try and remember, I was chosen for her (and no other). I will always embrace that beautiful day.......When I became a "Heart Mom".

- Stephanie Husted

Miss Madison

Friday, December 4, 2009

Update #1

6 comments:

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